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Position: Research Fellow in Epidemiology
Institution: University College London
Department: UCL Great Ormond Street Institute of Child Health - Population, Policy and Practice Programme
Location: London, United Kingdom
Duties: An increasing number of children are living with rare diseases, as a result of improved drug treatments and neonatal care. Rare conditions often lack effective treatments, or if treatments are available, data on long-term effectiveness are limited. The aim of the project is to establish a population-based birth cohort resource, with linkage to administrative data on long-term outcomes, to address this data gap. The cohort resource will be constructed by linking administrative data, collected as part of National Health Service (NHS) care, education and civil registration services, to a large database of newborn screening records (from approximately 2 million children) held by the North Thames Newborn Screening Laboratory; The post holder will lead the work to obtain the ethical and information governance approvals to set up the cohort (including NHS Healthcare Research Authority and the Confidentiality Advisory Group), and consult parents and children affected by rare diseases as part of this process. They will also lead a demonstrator research study to link clinical and genomic data on children with congenital hypothyroidism with gland in situ (CH-GIS, a rare endocrine disorder) to the newborn screening database and examine long-term trends in prevalence and treatment trajectories for affected children
Requirements: The posts offer an excellent career development opportunity for post-doctoral researchers trained in statistical analysis and epidemiological methods, with experience of analysing large and complex datasets, to gain experience in linking and analysing routinely collected NHS databases. The post holder will be able to draw on support for statistical analysis, data management and interpretation within the Child Health Informatics Group at the Institute of Child Health, and the project partners. Training in information governance, administrative data analysis and data linkage will be available to the post holder
   
Text: Research Fellow in Epidemiology, - Ref:1863353 Click here to go back to search results Apply Now UCL Department / Division UCL Great Ormond Street Institute of Child Health Specific unit / Sub department Population, Policy and Practice Programme Location of position London Grade 7 Hours Full Time Salary (inclusive of London allowance) £35,965 - £37,952 per annum Duties and Responsibilities An increasing number of children are living with rare diseases, as a result of improved drug treatments and neonatal care. Rare conditions often lack effective treatments, or if treatments are available, data on long-term effectiveness are limited. The aim of the project is to establish a population-based birth cohort resource, with linkage to administrative data on long-term outcomes, to address this data gap. The cohort resource will be constructed by linking administrative data, collected as part of National Health Service (NHS) care, education and civil registration services, to a large database of newborn screening records (from approximately 2 million children) held by the North Thames Newborn Screening Laboratory. The post holder will lead the work to obtain the ethical and information governance approvals to set up the cohort (including NHS Healthcare Research Authority and the Confidentiality Advisory Group), and consult parents and children affected by rare diseases as part of this process. They will also lead a demonstrator research study to link clinical and genomic data on children with congenital hypothyroidism with gland in situ (CH-GIS, a rare endocrine disorder) to the newborn screening database and examine long-term trends in prevalence and treatment trajectories for affected children. The post is funded by the Great Ormond Street Hospital Biomedical Research Centre for 1.5 years in the first instance. Key Requirements The posts offer an excellent career development opportunity for post-doctoral researchers trained in statistical analysis and epidemiological methods, with experience of analysing large and complex datasets, to gain experience in linking and analysing routinely collected NHS databases. The post holder will be able to draw on support for statistical analysis, data management and interpretation within the Child Health Informatics Group at the Institute of Child Health, and the project partners. Training in information governance, administrative data analysis and data linkage will be available to the post holder. Further Details A job description and full person specification can be accessed at the bottom of this page. To apply for the vacancy please click on the Apply Now button below. If you are unable to apply online please contact ICH Human Resources at ich.hr@ucl.ac.uk quoting the job reference 1863353. UCL Taking Action for Equality Closing Date 18 Apr 2020 Latest time for the submission of applications 23.59 Interview date TBC Our department holds an Athena SWAN Silver award, in recognition of our commitment and demonstrable impact in advancing gender equality. This appointment is subject to UCL Terms and Conditions of Service for Research and Support Staff. Please use these links to find out more about UCL working life including the benefits we offer and UCL Terms and Conditions related to this job. Job Description Apply Now
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